I’m participating in @sixuntilme Diabetes Month Photo A Day #dmpad Challenge. #diabetes #dsma
This is lilG 5months after his diagnosis with type 1 diabetes & feeling great! LilG had at least three years of diabetes symptoms before he was diagnosed. There were a few times I found him hypoglycemic and sleeping at daycare. There were a few times that his blood sugars were in the teens and he was so thirsty. There were many days that he didn’t feel good at all.
Being diagnosed with type 1 diabetes was no treat. It was a moment full of grief and loss. Being our third child diagnosed with this disease didn’t take away any of the pain of diagnosis. If anything we just revisited the pain we felt the first two times and added in some more.
But this moment, this moment was 5 months after diagnosis. I could see my son flying with his new health and vitality.
No, insulin is not a cure. Yes, I desperately want a cure for my babies. Until there is a cure however, I am forever thankful to have my children to hold in my arms.
‘Some’ bling was won ;).
Ave 6 ~ type 1 diabetes 0!
She managed her blood sugar beautifully all weekend thru a sprint, middle distance and long distance navigation courses. Although this afternoon she did have a tough low of 2.4mmol that took 98g of carb to recover.
Sam also enjoyed two races this weekend. He managed his own blood sugars easily.
What a great weekend we had in the outdoors. I am so very thankful on this Canadian thanksgiving weekend!
What’s one of my worst nightmares? Well I lived it this afternoon. At 3:45pm I saw a phone call come in from 14year old Sam. I answered and heard fuzz and then:
“mum, iz sham, at street bus and very low no food left.”
Sam, I said, what street are you on? The one I go on, he responded.
I could never possibly describe these moments. How your heart stops and yet races? How your mind shuts down but starts spinning? How your breath stops but somehow you can hear your sharp intakes of air?
Sam, I said, are you with anyone? No, he responded. A pause, there is people at the bus stop.
I felt instant relief. First because I knew he wasn’t isolated and second because I figured he was at one of the bus stops on his route home from his high school. Luckily, today I was at the doctor’s with his sister and only 3 minutes from where I suspected he was. I left her with the doctor, jumped in the van and tore off down the street. I found him quickly and he stumbled towards my van. I keep a mini cooler stocked for lows in the back. .
Looks like we’re going to need a better emergency plan. I wonder if Sam would mind carrying a mini cooler everywhere?
Insert picture of stressed out mumma here —
I would, but I delete all the pictures of myself where I look crazy. Well, I delete most of them, some of them I send to friends by text message to try to make them laugh during serious work meetings…
Anyway, last year, I started the school year with the idea I could just sort of ‘wing it’. Yeeaaaah, that did not work out so well. Sam and Ave actually did fine but for my then grade three lilG it was a terrible year. We had high blood sugars, low blood sugars, aggressive behaviours, and very little work accomplished. Then he had a seizure in October and started to refuse to leave the side of either his father or me. Diabetes gives a little guy a lot of extra room to play when he wants to be out of school. You can pull sites, unhook insulin pumps, forget to bolus food, or trade other kids for snacks. Or just go old school; hide in the bathroom, sit staring at nothing for hours or resort to aggression and get sent home. A terrible, horrible, no good, very bad year.
This year marks Sam’s entry to high school, Ave’s start of junior high years and lilG’s grade four.
Last week while I vacationed in beautiful rustic Muskoka with my two youngest kids I left it to the capable hands of our diabetes dad to organize last minute nursing and training the teacher. The good news? we will have the same lead nurse as last year! The bad news? lilG’s classroom teacher did not have time to meet to plan for lilG’s diabetes and behaviour management. Here’s where you can insert that picture of a stressed out d-mumma again.
It was only two months ago that the school principal promised me she wouldn’t let things be last minute. Not that I have come to expect much from my school system. I had called my local elected school trustee two weeks before the end of June and have yet to receive a return phone call. Yes, this school trustee was elected by me and my neighbourhood peers to act as a parent advocate within the school system. Add in a hopeless fatigue to that stressed out d-mumma picture.
I know from past experience that I will find the strength somewhere to keep advocating for my children in the school system. For tonight it feels like I’m taking some deep, deep breathes in preparation for a rocky year ahead. If only wishes were fishes…